The Star Legacy Foundation and Face2FaceTwin Cities ‪‎stillbirth support groups have merged. Groups start tomorrow, 6/9/15, at Partners in Healing of Minneapolis.  All groups are free and are offered on Tuesday evenings.  Support group facilitators are Joann O’Leary, PhD, MPH, and Debbie Fischer.

Pregnancy After Loss Support Group – Losing your baby was the most awful experience of your life. Now, facing a subsequent pregnancy is filled with hope but also great anxiety and concern. Learn to nourish your pregnancy while honoring your grief. Talk with professionals who can support you through this journey; meet other expectant Mothers who are on your path but also those who have been through pregnancies subsequent to their own losses.This group meets weekly on each Tuesday of the month from 5:30 pm to 6:45 pm at Partners In Healing, 10505 Wayzata Boulevard, #200 Minnetonka, MN 55305. Enter on the west side of the building.

I wrote this blog post for Pregnancy After Loss Support, a wonderful website where women who have suffered the birth of a stillborn child can grieve, health, and find hope again.  Will you please share it with others?

Five Essential Ways Doctors Can Help After

Stillbirth

June 1, 2015  Deborah Simmons, PhD, LMFT

Dear Doctors of the World:

We want you to know that we respect you and your knowledge. But all the good stuff that you bring to your practice on a daily basis is not so helpful to us after a stillbirth. Please take these suggestions to heart, for us and your other patients who have suffered a stillbirth.

1) Please refer us to therapy and support groups.
We are lost. Our baby has died and we have no idea how we are, who we are, and how we will ever survive this. We could never have imagined that our pregnancy would end in a stillbirth. Please let us grieve with you. Please show us empathy. Please refer us for therapy and support groups, to let us know that we are not the only ones who are going through this horrible pain. We do not feel strong enough to do this by ourselves. We should not have to do this by ourselves.

2) Please flag our pregnancy loss in the chart so you and your staff do not ask us how our baby is doing.
We are fragile and so vulnerable. Many of us have PTSD and every time we walk into your office we have flashbacks and re-experience our grief. We are not “over it”. Please know that we are not trying to be difficult or dramatic. We are often just trying to get through the day. We can be triggered very easily back to our traumatic loss. Please know that we grieve every day for our baby who has died. Please let us talk about him or her by name. We are hopeful that we will have a rainbow child AND we cannot and will not forget about our child who died. He or she is always with us in mind and spirit.

2) Help Us to Plan For a Subsequent Pregnancy.
We are scared to death about the next pregnancy. Please meet with us and develop a detailed plan that will help us find the courage to try again. Help us to understand what happened. “These things just happen” will not suffice. Read the autopsy report with us and explain it, please. Please don’t give us false reassurances. We are too scared to hear them. We are still learning to trust our bodies—and you. We count time by every 15 minutes, every half-hour, every hour, and every day. The idea of a pregnancy that lasts almost 40 weeks freaks us out. Please tell us the truth. Give us the facts. If there is a way to do this safely, give us the plan. We don’t want to muddle through this. A subsequent pregnancy may not feel high-risk to you but it does feel high risk to us. Tell us that you will be willing to consult with perinatology (i.e., the high risk OBs). If we should not have another pregnancy, please say so. We don’t need any sugarcoating.

3) Don’t tell us that everything will be okay.
We are not okay. Anticipate that we will be hysterical during our next pregnancy. Normalize it. We will need superhuman strength to get through a subsequent pregnancy. It may be difficult for us to get excited about it while we are pregnant. Every day is unknown for all of us but a previous loss amplifies our fear of the unknown. Help us to be okay—for that hour or that day. Know that we will not really be okay until a baby is warm and squawking in our arms. For us this will be a “prove it” pregnancy. Do tell us that you will do anything and everything to work with us to ensure a successful pregnancy. Work with us collaboratively.Here is the most important thing for you to know: LISTEN TO US. We have lived in our bodies. You have not.

4) We need data for reassurance, not words.
Offer to give us more tests and scans when we ask for them. We will pay for them. When you tell us that insurance will not cover them, we will tell you again that we will pay for them. We need data, faith, and hope and we need you to have data, faith, and hope for us and with us. Remember: It’s about us, not you. If you cannot or will not meet us in the middle, we will have to find other care.

5) Show us your human side.
Talk to us as fellow travelers, not cases. Be our champion. So many people have played down the pain and trauma of our stillbirth, we cannot bear for you to be another. Please tell your partners and your nurses about the plan for this pregnancy, so we do not receive conflicting opinions or plans when you are not there. Give us a hug or hold our hand. Literally. We need everything you’ve got to get through this.

So, in conclusion, dear Doctors of the World, please work with us. We will do our best. Please do your best, too. It is through our connection and collaboration that something good can come out of our pain and loss.

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Mother’s Day is so difficult when infertility, miscarriage, or stillbirth are part of your life. When you are not sure that you can go on, just open your heart to possibility.  Even bleeding hearts are open…

On this New Year’s Day 2015, I raise my glass to you and to new beginnings.  My new year started at heated vinyasa yoga with a reading from one of my favorite books, Journey to the Heart by Melody Beattie.  (You can find it in the book section of my website).  It speaks to all that is in front of us–hurts from the past,  reassessment, and possibilities going forward.  It is about honoring the beginning.  I had to share it with you.

Let this year be the year that you resolve your infertility.  Let this year be the year that you have a healthy, happy baby in your arms.  Let this year be the year that you find love.  Let this year be the year that you find safety from an abusive relationship.  Honoring the beginning…

Honor the Beginning

 by Melody Beattie

Beginnings can be delicate or explosive. They can start almost invisibly or arrive with a big bang. Beginnings hold the promise of new lessons to be learned, new territory to be explored, and old lessons to be recalled, practiced, and appreciated. Beginnings hold ambiguity, promise, fear, and hope.

Don’t let the lessons, the experiences of the past, dampen your enthusiasm for beginnings. Just because it’s been hard doesn’t mean that it will always be that difficult. Don’t let the heartbreaks of the past cause you to become cynical, close you off to life’s magic and promise. Open yourself wide to all that the universe has to say.

Let yourself begin anew. Pack your bags. Choose carefully what you bring, because packing is an important ritual. Take along some humility and the lessons of the past. Toss in some curiosity and excitement about what you haven’t yet learned. Say your good-byes to those you are leaving behind. Don’t worry who you will meet or where you will go. The way has been prepared. The people you are to meet will be expecting you. A new journey has begun. Let it be magical. Let it unfold.

All parts of the journey are sacred and holy.

Take time now to honor the beginning.

Let me know how your beginnings go…

Pregnancy losses include a number of difficult experiences, including infertility, miscarriage, stillbirth, premature delivery, unexpected fetal anomaly, and birth trauma, among others.   I approach pregnancy losses and bereavement comprehensively.

Some losses result in death.  Other losses feel like a death.  Some losses are symbolic.  When a woman is told that she will need infertility treatment, or that her baby has an anomaly, she is experiencing profound loss.   Often people experience more than one type of loss in their reproductive lives.  This can also include complications in pregnancy or trauma during labor and delivery.

You do not “get over” a pregnancy loss, but you can integrate the experience into what is hopefully a long and happy life.  Telling your reproductive story is a must for healing.  Too often people are afraid to tell their story out of embarrassment, or fear of burdening others, or because others minimize or deny the physical and emotional pain caused by reproductive losses.  This can lead to isolation, resentment, and depression.  It is insufficient to say that loss is difficult, as each person and each couple experiences loss differently.

I actively elicit your reproductive story and provide hope for healing and transformation.  With you (and your partner, whenever possible) we will explore:

• Gender issues
• Psychological make-up
• Childhood trauma
• Medical trauma history
• Family history and dynamics
• Belief systems
• Social environment
• Spiritual beliefs
• Resilience factors

I listen to my patients’ unique situations and partner with them in developing the most appropriate treatment plan.  Many of my patients have found healing and new purpose. I collaborate actively with physicians, nurses, acupuncturists, and other health care professionals across the Twin Cities and around the country to ensure that healing is complete and that hope can spring anew for family building in the future.  I am available for professional consultation, as well.  Compassion and clinical know-how can ensure a variety of good outcomes including parenthood, better relationships, and self-compassion. Come see me when you are ready.